A Journey with Love and Laughter

Read about our family as we journey through life as a family, with siblings, school and spina bifida, and lots of fun and laughter along the way!

Sunday, April 29, 2012

One Step Back...

Nickolas has been doing so well with is walking. Looking at him walking with those canes still amazes me! I’ve been showing everyone the videos. And when we are at home we can’t keep him off his feet! He stands and climbs over everything!


We had some issues with his AFOs in January, one of his braces was slipping off and he had a dime sized red spot on his heel. We noticed it on a weeked, So we kept them off until we could see his orthodics guy during the week. Luckily we were able to get in and see him quickly.
I can't find my post - so I guess I didn't blog about it.

So Nickolas got a break (in January) from standing and walking until we could get it worked out.
It happened again. Saturday morning he has a nickel sized red spot on his heel – same place. Same issue. This week his AFO has been slipping off. We look at his feet every night while he’s on the potty, but it wasn’t unitl Saturday morning that we noticed it.


Luckily we are able to see orthodics Monday morning (love people who answer emails on Saturdays while they are off on vacation!) So no AFOs, no walking in the walker.
I do not say no standing – because Nickolas is taking that in his own hands – or feet.


He won’t stay off them!

Nickolas has been standing without his braces for a while – usually in the bathtub of all places. His ankles are obviously weak and it really makes me cringe, but he can get up there and wants to get up.
This was taken last fall right before a bath.


He still goes over on his ankles, and it still makes me cringe – but I can’t force him to stay on the floor.


It’s hard when Nickolas is asking for his shoes and I can’t put them on him!

Thursday, April 26, 2012

No rest...

Why stay comfortable in one way of walking, when we can keep challenging you!

 At conductive education this week Abigail decided it was time for a challenge.

Not only did Nickolas accept this challenge. He went from his walker, tried these ‘sticks’ and thought it was great!
It helps to challenge him to keep his balance more, and coordinate his movements to walk.
Even at the end of our day he asked to try them again.
 I am amazed at how far Nickolas has come in such a short time.
Nickolas has realized that he has the ability to do what he wants on his own.
He has realized that he has independence!!!
(I have a video, but it won't upload)

Sunday, April 22, 2012

Pimp that ride!

Nickolas has his very own walker.
No more loaners. This one is totally, completely OURS.
Only 9 months in the making!




We decided to try it out a bit before taking it home.
Nickolas enjoyed adding to his sister's artwork!


We even took it outside in the grass
Don't trust that cute face! Nickolas threw a fit because it didn't move as well as he wanted.

But nothing really says 'it's ours' without some bling.
Come on Mom! We gotta handle this now.

We started with some cars!

This is the bumper - its turns around, so so the cars can race around and around.


Then we added all of Nick's favorite characters on the back.


We got Dora, Diego, and Cat in the Hat!


And the finishing touch...

I have some more ideas to personalize the walker some more. Just have to find a cool licence plate, and some kind of backpack/bag? I'll know it when I see it!

Friday, April 20, 2012

The silliness of parenthood!

I love my kids, that really goes without saying. I love them every moment of every day.
But I also love being their mother.

I love the silliness of it


Like dancing in the aisle of super market because a fun song come on


Wearing the kids fun hats


Belting out theme songs, just because


(or in the case of my father - IT'S GROUNDHOG DAY!! At 7am, every.. single.. day - it was an improvement on GOOD MORNING VIETNAM!)


I love the silliness of dancing however my body feels like moving at the moment
You know that saying Dance like no one is watching - my new saying is  dance like your kids are watching
Or even better - dance like you dancing with your kids!


I love the silliness of getting on the floor for some crawling contests


My kids think I am the most talented artist ever!
Be jealous of my stick figures! And I can (mostly) stay inside the lines


 Needless to say I have the best decorated car on the block!
I never wanted a black car - but it makes the best canvas!



So today I am succumbing to the silliness of motherhood!
It's a good day.

Saturday, April 14, 2012

Fast!


I think I need to get a better pair of running shoes!