A Journey with Love and Laughter

Read about our family as we journey through life as a family, with siblings, school and spina bifida, and lots of fun and laughter along the way!

Saturday, March 23, 2013

The loss of a friend

You meet a lot of people in your life.
Some people come and go, some people try hard to remain in your life and some you just connect with right away. There are people that go an extra mile and really care that they touch your life.

We first met when Nickolas was 6 months old. I joined a mom and baby group through Healthy Babies/Healthy Children. It was a group of about 12 moms and babies, all between 6 weeks and 9 months. I didn't attend one of these groups with Katheryn but I wish that I did.

I was a little nervous at first about attending this group, I wanted to meet people, and not have spina bifida have anything to do with it. I wanted one thing in my life that had nothing to do with spina bifida, but was about having a little boy.

It's not like I hid it. In fact my diaper bag had a poem on it about being a special needs mom. After the group, a bunch of us decided to continue on to Tim Hortons and sit around and chat. One of the girls approached me and said that she noticed my bag. And we got talking.
That was how I met Andrea and her daughter.

We connected right away. We had a number of things in common, we both came from a health care background, (she was EMS), our kids were a month apart, we had similar interests and we could talk. Andrea always had fun ideas and things to do. And wanted to share.

Our friendship continued past the time we spent with the group. Along with about 6 of us who tried to get together regularly for walks, baby food making, aquafit, strollerfit, we even went to the kids first concert together!



We did things all the time when I was off on maternity leave. Baby or craft shows, classes, shopping, coffee, or just a play date. We even traded my formula for her diapers! It worked out great for both of us.

This picture was from day-long marathon making baby-food to share.


From personal experience we could talk about medical issues together and each of us could understand the struggle that the other experienced. We could talk to each other. Andrea came to our first SWWR walk with our family. She wanted to help, she donated and even raised money for the SB&H with us!

Andrea was always ready to go the extra step, to include everyone and to have fun doing it.
She helped to throw a 1 year party for the kids that we all born within a month of each other


If there was an event to host, she didn't hesitate to host it. It felt great that Nick was going to have friends his own age that are growing up with him, and accepting without question.
After I went back to work we didn't see each other that much. But she always sent me event emails, but I wasn't usually able to attend. On my to-do list, in the back of my mind, was that I wanted to reconnect.

Last month month Andrea was organizing an Easter party for the kids and families; and since I am no longer working weekends, I was actually able to go! It would provide an opportunity for us all to connect again. And of course talk about the kids starting school in the fall. (I actually fleetingly considered the public school so the 2 kids would be at the same school).

Last week Andrea sent out a message saying that she had to cancel the Easter party, but would move it to a spring fling in May, when her health was better.

I sent off a quick message saying that I couldn't wait to reconnect, to take care of herself and I will see her soon.

Unfortunately... No, so much more than unfortunately...  Devastatingly, that is not going to happen.
I found out on Monday that Andrea passed away the night before (March 17). I sat in my office at work, stunned, before needing some human contact. The need to reach out to others without really wanting to go into details about why.

I cannot even imagine the pain that her family must feel. I know she would fight tooth and nail for her daughter, with every last breath and it breaks my heart that that was not enough. That her daughter, so close in age to Nickolas, will not be able to know her mother that touched my life for such a short time with her caring spirit.
The Andrea I knew loved her daughter more than anything. Every single thing she did was to make life better for her daughter. And it just isn't FAIR.

A lesson that I've learned from Andrea; get out there and do the fun things, look for experiences in the community, think of ways to include others and care about what is going on in your friends lives. And it is much more fun to do things with a friend.
Your children are the greatest thing you will ever do in your life. And never take life for granted.

I am so lucky that I knew you Andrea and I am devastated that I am not able to continue the friendship that started with a day at a baby group.

 
Rest in Peace my friend.

Friday, March 22, 2013

When knock-knock jokes go wrong




Immediately after this the kids both said "Can we do that over?"
Sorry guys, that first take was priceless!

Tuesday, March 19, 2013

"I can't"


Every single night we go through the same thing.
"I can't, I can't."
And I'm telling Nick "I don't want you to say you can't! You can."

Nickolas is only 3 but I don't like that he is already saying "I can't".
I wish that I could take away that doubt. It is heart breaking to hear someone say they can't. Isn't 3 supposed to be the age that you think that you can do everything! While still, of course, needing your mommy.
A child is supposed to feel that they are limitless. They are not supposed to know they have limits.

Instead Nickolas is saying he can't.


In this case it is less of an "I can't" and more of an "I don't want to" or "I need help". So I am working on getting him to say "I need help" instead of "I can't".

I am working on getting Nick to take his clothes on and off.
Seems simple, right? But Nickolas hates it, he is not happy.

I give him his shirt and he just holds it. "I can't"
I don't want to hear can't! It's upsetting to me to hear him say this. He can. We can

And we do it together.
And he can.

Step by step. Just over and over again. Head, arm, arm, belly. When we do it together he is less likely to say that he can't. And I'm not doing very much.

He is so proud when we get his shirt on, that he wants to try for his pants too!


Katheryn has been doing some things by herself too.
Like picking out her own clothes (she went to school like this)


And doing some chores. Setting the table and clearing the table after dinner. While Nick gets the dishes stacked after dinner.


I wonder if I can make "Can't" a forbidden work in the house?

Saturday, March 16, 2013

Making memories with You

I had alot of fun doing the video of Nickolas, that I just couldn't stop!

The kids loved seeing themselves in the video! So I couldn't stop at just one.

The program I used to make these videos is on animoto.com
They do have a 30 second tease that is free.

It's so easy! The hardest part was trying to cut my pictures down to 4 minutes of song.

If you wanted to do this, my suggestion is to copy all the pictures/video you like into a folder and just upload of all of those into the program. It takes a while to load, but then you have more freedom to move things around the way you want.

Watching you smile

I am going to be doing another talk at Centennial College in a couple of weeks.
I love being able to have Nickolas with me, to really put the face to spina bifida. But unfortunately he won't be able to come with me.
And next year he will be in school.

So I created a video to show at the beginning of my presentation.



I had alot of fun making this.
Now I'm starting on one for Katheryn!