A Journey with Love and Laughter

Read about our family as we journey through life as a family, with siblings, school and spina bifida, and lots of fun and laughter along the way!

Wednesday, November 13, 2013

Birthday Boy!

Happy Birthday Nick!
 
 
This was Nick's first birthday at school, the first birthday away from us.
He had a lot of fun! Brought cookies into school, shared with his bus driver
 

And then had cake and a party at daycare
We finished the day with a dinner out



Nick's birthday got me thinking, and remembering.

4 years can really change a lot.
4 years ago we went to the hospital to have a baby.
Had that baby and got to hold him for a couple of minutes


And then we both went away
Me to recovery and he was transferred over to sick kids within his first couple of hours



In the meantime a simple little sore throat and a little cough (not fun with a C-section) turned into a H1N1 diagnosis.
And for a week this is how I got to see my baby boy
Through a picture

 
Having to give consent for surgery over the phone, and getting report from the doctor, over the phone. Not being able to go and see him before that surgery. Just trusting...
 
 
The rest of his family could visit (except we kept Katheryn away, until we could bring Nickolas home)
 

I could call and check up on him.
And of course there was the pumping every 3 hours (with mask to not contaminate anything).
I can remember the wondering. How was he doing, why wasn't I more upset that we were separated. Not really feeling like a mom.

 I can remember like it was yesterday the drive in with my father the drive downtown.
Wondering what it would be like when we got there.
Would I recognize him? Would I even know my own child?
Would I feel that bond I'd been missing?


The nurse had to show me/teach me how to pick him up. How to be careful

I don't remember what it felt like to leave that first day. I don't really want to remember that part. I remember that I had to say that I didn't have a cough (which takes weeks to go away with H1N1) and guzzling cough syrup even though it upsets my stomach

But it took a couple of days before I was able to stay over night
But in no time I was staying in my pjs, moving the room around how I liked it, listening to rounds and attempting to know who all of the doctors and residents were (I wasn't very good at remember names)


We made Nick's room as personal as we could. Cute clothes every day (no boring hospital gowns) and a homemade blanket


 After 2 weeks, a big dressing and a wound infection we finally got the all clear that we could be discharged.
I had his going-home outfit all picked out!
It took a couple of hours to get organized and fill our prescriptions, and then there was the rush-hour traffic.


And Nickolas got to meet his big sister!


I tell this story to people and they can't believe it.
I suppose I was a very strong person at the time.
But the time isn't a horrible memory. It was just 2 short weeks in the last 4 years. (The diagnosis day is definitely a horrible memory-day). We had a son! We got to take him home! Sure there were some bumps in the road, but in the end he was still ours.

So even while talking about C-sections, separation, flu viruses, surgery and a newborn, I was positive, it was just a journey.

It started 4 years ago
And it seems so long ago, but I can also remember it like it was yesterday!

 Happy Birthday to my Nick!
I hope that you have as much joy in your life as you bring to me! Love you!

Sunday, November 10, 2013

Birthday Party... a la Backyardigans

So Nick has had it in his head that he will have a chocolate birthday cake with a backyardigans candle on it.
And I found one online... with $10 S&H. So I didn't get it. I thought... there will be one in the store... well there isn't. In all of the stores I looked at.
So it was up to me to be creative
 

Nick was happy so I guess it worked out.
Luckily I did buy some backyardigans stuff from another website (that didn't carry the candle)

And of course Nick wanted me to bring the houses.
This was the houses from his Halloween costume (his wheelchair one)


For Nick's birthday we decided to go bowling!


The had this ramp for Nick to use.
Nick's friend Antonella got to use it too


All the kids had fun.
We had 9 kids all together and about 15 adults, with 3 lanes or bowling


 It was definitely a winner for Nick!

If you are wondering about the hat...
Nick wanted to be another backyardigan... Pablo, the one with the helicopter hat



We generally kept track of who was up next, but it didn't really matter


I think the highest score was 115.


After bowling was time for pizza




And of course cake


And singing
He wasn't very sure about the singing



Oh no!
Not cutting into my beautiful creation!
(Nick might have gotten too much joy out of that one)
He was very specific that he only wanted to eat Pablo.


All of the kids got bowling medals


All of the kids were excited with this giant Pablo balloon


After lunch was the arcade
And then it was time to bring a tired boy home


 Oh yeah and presents


And smiles


 Nick had a FANTASTIC Backyardigans birthday party!

Thursday, October 31, 2013

Happy Halloween

The day has arrived!
Time to get ready to head out to school
 
Nick had his walker...
 
We've had a number of people who don't know who Tryone is...
(I think I did pretty good...)
 
 
(I was afraid to send his wheelchair costume with the houses I spend hours doing to school)
They went trick-or-treating at school
 
 
 
And Katheryn was a super-hero
Just like she wanted since the summertime.
With make-uped mask

Katheryn wanted to be her own super-hero.
She was excited to go, and I had plans to do all this crafty-stuff to her costume, but it didn't really need any touch-ups. Katheryn was happy with it (she just wanted the make-up - and colour in her hair)

  The kids picked out my costume


The day and night called for rain and wind.
So we wanted to get going in a clear period
 


 See my foam houses!! I didn't really get any pictures of the finished product
It was all made of foam and plastic so that it can withstand the rain


And it did
We got to the end of the street before the rain started
But we got soaked by the time we were done (and kids wanted to go back too)

 
I forgot how last year we had some issues about actually trick-or-treating
Until we got to the first house
and the steps
 

Nick didn't really mind though
Some people in the houses came out to give Nick candy on the driveway, and Katheryn was good at asking for something for her brother, or one of us going up with her.
(We did have one person who thought he was Santa's reindeer... with the houses)


 He  didn't notice, didn't care.
And hopefully I'll have a plan if her comes to that point.
But right now it's about fun and showing off how cute they look!


And what some sugar at bedtime does to the kids
(And vampire teeth in the Halloween bags)

Tuesday, October 29, 2013

a Sneak Halloween Peak

The same as last year, I had a walker and a wheelchair idea going.
And I had one day set aside to do everything!
 
This is my walker!
 

I had to try him in it a couple of time to make sure I wasn't blocking anything.
Plastic plates, permanent markers, popsicle sticks, green tape and a plastic table cloth
Tada!


Nick just wanted to try out the antlers!
(And he has orange face makeup on too)


My wheelchair houses needed some additional work as well


I wanted it to be real houses
To have more substance, but still be able to go on the chair.
This is the final product


It should be waterproof and durable enough.
Now I just have to make sure that they will stay on the wheelchair.
I'm waiting for something to attach it to (my project for tomorrow). But the Tyrone house (the orange one) will fit behind him, and the other 2 should go beside the chair.

Because I put so much work into it, I'm hesitant to send him to school with these houses. So the wheelchair will go around on Halloween Night, and the walker will be ready for school.

Nick thinks they are fantastic! But there was a lot of detail in these!
Katheryn is ok will so much time spent on Nick's costume. She just wants me to paint her face