A Journey with Love and Laughter

Read about our family as we journey through life as a family, with siblings, school and spina bifida, and lots of fun and laughter along the way!

Monday, April 7, 2014

Underwater

I got an underwater camera for Christmas, so of course I had to try it out!
I had a blast with it!
 

The kids were not as impressed with it as I was
But Katheryn was game to try until I got  good picture

 
And Nick didn't really have a choice, but it only took a couple of attempts to get this one
 

And they still liked the water after I got my masterpieces, so we were all good!

This was the closest I got to an underwater picture of Kyle

Sunday, April 6, 2014

Howling Weekend!


We spent 3 days and 2 nights at Great Wolf Lodge. After our trip in 2012 I wanted to come back. And we still didn't get to do everything they have to offer!

The bunk beds were not as fun as a couple of years ago during the night hours, but during the day they loved it!


We spent some time every day at the arcade, and the kids all had their favorite games to play
Nick won all of these tickets (200) playing a single turn/coin of a game!
He was so proud of himself!


Katheryn liked chopping up all of the fruit!

 
There was a lot of tough decisions before we left on how the kids wanted to spend their 1200 tickets

And of course we needed more time in the pool!

 

These floaties were great! Katheryn tried to swim a bit without them, but it was too busy.

 
The first day we spent in the kiddy pool, the kids didn't want to do anything else.
But the shallow water let Nick crawl around... and tear up his feet (not that bad, but some)


And we were close to the slides so they could try them out
Katheryn was very brave this year and went on all of the kid slides. The yellow and the green were her favorite because they were twisty.


Nick went on the orange one (his favorite colour). He went on it only once, and said he didn't want to go on again "because my legs might go up again"


When we went investigating we found a bigger pool that he liked a lot more.


Even if it gave him the opportunity to go underwater.


I wanted to spend time in the 'lazy river' which wasn't so much lazy as filled with people and tubes in a fast moving circle with times when water dumped on you
Nick didn't really like it


I liked just floating (as long as I wasn't run over by anyone) and Katheryn loved just running around in the water

But that was the extent of the exploration. No wave pool or anything that potentially dumped or sprayed water. There was also an obstacle course kind of pool that no one wanted to do.

But even if we didn't do lots of what they had. The kids had all of the fun that they wanted

 

I tried to get them to explore the big blue slide. But not this time. Looked like fun!


We had a FANTASTIC family weekend!


Fun and exhausting!

Saturday, April 5, 2014

Happy 6 years!

6 years ago, this little munchkin was born
 

And somehow this little tiny baby became a big girl! 6 whole years! It's like a lifetime and a moment at the same time.
 
 
For Katheryn's birthday this year we decided to take our family gift cards to Great Wolf Lodge and have a big birthday weekend!
 
 
When we arrived, Katheryn had her own present waiting for her!
She has been sleeping with this wolf ever since
 

No... I don't think she is happy and excited at all...


Katheryn was very particular that she didn't want to open any presents until her actual birthday.
And also that because it was her birthday we had to do everything she wanted to do

Like being the pool all day


Telling everyone she is 6 years old

 
Playing with her brother in the big pool
 
 
And go on all of the kiddy slides
 

Part of the birthday package had a cake. I brought candles and a lighter, so we went back to our room and blew out candles (singing in the restaurant didn't go so well)


There was also the dancing to the Birthday card... but I posted that earlier

She had an amazing day! And we were all exhausted at the end of it.
More Great Wolf Lodge pictures to follow!




Monday, March 31, 2014

More Summer Camp!

We have been wanting to continue with conductive education for a long time. But differing commitments always prevented us.
But I have kept in contact with the conductors (the instructors and therapists).

When the summer camp schedule came out I was really hoping that we could fit it in. At first glance it looked like we wouldn't be able to make it. And we signed the kids up for regular camp.

But after talking with them about going for part of the camp, and talking with my parents to see about transportation, we were in!

I am so happy that this year we are going to be sending Nick for part of the camp. 10 days of all day camp of conductive education.
Pushing him and being creative, learning how to be independent and being aware of what he can do.

I'm so excited about those days.
Yes it's camp and fun, but it's also therapy.

Nick has also had the opportunity to star in a March of Dimes ad!


I have also found that Nick is a conductive education mascot through another helpful site too! http://www.threetobe.org/our-initiatives/academy-of-conductive-education/

Tuesday, March 25, 2014

Summer Camp and Options

We have such a fantastic time at Easter Seals camp last year that we were very excited to apply for the family camp again this year.
Even talking two other families in trying to get a group of people to go to the same camp. So we applied for Easter Seals camp very soon and just had to wait to see if we had been accepted or not.

 Because the Easter Seals camp is a family camp so it meant that Katheryn and Nickolas got to both be at camp together, both participate in camp activities together, with the same people and just be together. And they also had us there so that we could be support while they could also still have independence.

Unfortunately we found out that Nickolas did not get accepted into Easter Seals Camp for this year. It was disappointing for us. But we also had the opportunity to go one year and there were other families who haven't had that chance. It just lets another family have as much fun as we had.

So now we have to figure out what we're going to do for some kind of camp this year.
Katheryn went to zoo camp in 2012 for the first time, and Nick went to Conductive education camp through the March of Dimes during different times in the summer.
Conductive Education camp was an option that I've been looking into, but shift work and a daily trip into Toronto are also concerns. But Nickolas would be getting some intensive therapy we've been missing for a couple of years.

I went to a Special Needs Recreation Fair last month to see what was available in Durham. A lot of the camps were for kids older than Nick, or with non-physical special needs. So we didn't have a lot of choices. What I was really looking for was some kind of summer sports program (i.e. soccer) that Nick could do in the evening every week. But they didn't have anything like that.

But I did get some ideas of what was out there for day camps. And things that I needed to consider.

Do we send both children to the same camp where Nick may not have the support that he needs. Especially for the catheterization, but that they would be together and they would be doing the same thing and they would be with their peers.


Or do we send Nicholas to Grandview camp where it would not be an issue. He would have fun but he would not be able to be with Katheryn, because she doesn't receive service at Grandview anymore.

I looked at what was offered by the city of Oshawa for kids who were 4 and 6. But even if there is only 18 months between them there were not a lot of camps that would be appropriate for both of them to attend (most of them were age 6+).
There was only one choice that would be appropriate for a 4 and a 6 year old. So we would send them to two separate camps. And if they are already separated we might as well use Grandview camp for Nick's support.


So we signed Katheryn up for Dance Camp, for kids 6 and up and I'm sure that she will have a fantastic time. Nick will go to Grandview camp,  he will have fun and it is will be at the same location as his school. It will help for the two months of not having any school.


I'm a little bit disappointed that they won't actually be at camp together. But it is the same decision we made for school. We won't have to worry about if Nick is having fun or if he is the only one with a physical challenge, I won't have to worry about catheterization and mobility. But I still hate the thought of separating them, even if it is just for one more year.

So this is our plan for camp I have signed them up they're ready to go and for one week in the summer time they will have a lot of fun and for the rest of the time... Still have a lot of fun