A Journey with Love and Laughter

Read about our family as we journey through life as a family, with siblings, school and spina bifida, and lots of fun and laughter along the way!

Tuesday, June 29, 2010

Happy and Healthy Baby Boy!

We had our neurosurgery appointment this week.
2 hours to get there, 30 minutes appointment - no waiting, and 2 hours to get home. We did the subway experience, and I wore him down and then carried an umbrella stroller - which I didn't really need. Everyone in the subway thought he was very cute.
Anyways, we got the A-OK!!! Everything looks great, we'll see him again in 1 year and get another MRI. Sounds great! So I'm officially labelling my kid. Yup, he is a happy, healthy baby!

Sunday, June 20, 2010

The Walk!!!!

From Left to right - Kyle, Gwenda, Laura, Michael, Lisa, Amanda, Nickolas, Cheryl, Marie, Shannen and in strollers Katheryn and Nickolas (the others stayed off camera)
We had our Spirit Wheel Walk Run yesterday. And raised over $2400!!!! I still have more donations coming in, and won't have a final amount until the beginning of July. To say that I am surprised and flabbergasted by all the support we have received would be an understatement. Our goal had been $1000 and 10 walkers and we ended with 12 adult walkers and 4 kids in strollers.
Thank you to our walkers:
Amanda, Kyle, Katheryn and Nickolas Ridding, Gwenda, Michael, and Laura Bartley, Marie, Shannen and Madison Ridding, Lisa Aubertin, Cheryl Parsons, Mike and Devon McDonald and Andrea and Zivah Smith. My father Gord Bartley decided to sprain his knee 2 days before the walk and wasn't able to make it. Katheryn, Nickolas, Madison and Zivah were our junior walks, but enjoyed the ride in the strollers.

We walked along the Durham lakeshore, from Liverpool pier to Rotary Park in Ajax, and then turned around and walked back. The weather was.... interesting. It was hot and sticky, but nicer once we got a breeze from the lake, and then it rained off and on, but usually just enough to cool us down and put on rain jackets, before needing to take them off again. Afterwards we went to my parents for a party and the sun was out and we relaxed by the pool. And had a couple of dips as well (sometimes as a result of a couple of bear hugs).

So this is the kid we are walking for? He was wearing his shirt that says This is what Spina Bifida Looks Like. And he smiled and blew bubbles the whole way!

Sister Katheryn is celebrating the walk with the rest of us - with her lei's and pinecones.


I'm already thinking about how we can do this for next year! (I think doubling the walkers and the amount raised is a start)

Monday, June 14, 2010

Celebrating

Yes I'm upbeat and feel like a little celebration today. Any specific to celebrate? Not so much. Just celebrating being with my family. It's nice to have some normal days and not be so caught up in the turmoil and worry that seems to take up our lives. So today I am celebrating nothing, normalacy.
Nickolas is doing well, we went to the doctor  (regular check-up and shots). He is 22lbs, 1 oz! Time to upgrade the car seat.
We've got Nickolas a new chair from physio. It's called a corner chair and is meant to let Nickolas sit, but also get his hands free so he can play with toys. It kind of looks like he's sitting behind a big business desk, and he can sit behind it and make plans for Ruling the World! (evil laugh). Katheryn likes it as a place to put her dvd player. It is on loan from Bloorview Kids for as long as we need it.
This just shows an example of how we spend our day. Katheryn tries to jump from as high as she can get (the top of the couch) and Nickolas watches and laughs at what she is doing.

Tuesday, June 8, 2010

We have ROLLING!!

Finally after alot of work and enticement, Nickolas decided to grace us with rolling over.
I explained to him that rolling over was very important, and he was starting to make his mommy worried. Also Kingsley (a fellow baby with spina bifida) has already rolled over and he is younger! So after much consideration, Nickolas decided to give it a try!

Seriously though. YAY!!!!!!!

Nickolas is a bit of a bigger kid, has some extra padding that he needs to haul over (but I love all his rolls and dimples). He also has a huge scar on his back! It goes all the way over to one side, and with the scar comes a scar to muscles which means that he is starting from a negative to get strength and control of his trunk. This is physio paying off.


This was all I got and then PSYCHE! Back up - but he did it off-camera