A Journey with Love and Laughter

Read about our family as we journey through life as a family, with siblings, school and spina bifida, and lots of fun and laughter along the way!

Monday, November 14, 2011

Who? Who? Who is Two?!



The day started off pretty well.
Nick was woken up by sister Katheryn singing 'Happy Birthday' to him!


And he came downstairs to a bunch of presents on his new chair (I've loaded this picture a dozen times and saved it different ways in different files and it still comes sideways!)

All he wanted to do was play with the dinky cars! (Uh oh, I feel a 2 year old attitude coming on)

 He was quite upset that we really wanted him to open those wrapped boxes and put down those cars!

 But he eventually found something he liked better!


And then it was party time!


All of our friends and family to come celebrate with us!


And Nick got lots of things he liked!


Every present we opened, he wanted to play with immediately!


So this...


 Turned into this...


And this...


 Before we got here.



And of course birthday cake time!

Wow Mom! Take a look at that cool cake!



Um, Mommy, did you know all these people are singing?


 I think they are singing for me!
I'll play shy (and give them a show)


OK time to blow!


Yup, I did good!
That's how you do two guys!


Time to eat!





Yummy, let's share!


That was good cake!



Happy 2nd Birthday! I know you had a great day, and have lots of fun ahead of us this year!

Sunday, November 13, 2011

The 2 year preview!

In the last 2 years we went from this

1 day

6 weeks
9 months

Last year!



15 months
STANDING!

18 months
Loving animals and touching EVERYTHING

22 months
Look at that attitude coming through!

23 months
Liking this independence-thing

Almost 2!


Preview done!
Now you have to wait until after the party (and when a have some time to post) to catch a glimpe of my litte 2 year super-hero!
Happy Birthday Nick!

Friday, November 11, 2011

The Big WC

We are there. We have it. The Wheelchair.

It is the thing that you scan that list looking for. What list? The list you get when you get the diagnosis. The list that says if your child has level __ they will use various ways for mobility. And the first thing you do is look at that list to see where a wheelchair falls.
But this wheelchair is not on this list. This is a wheelchair to replace his stroller. This is a wheelchair  to show Nick that he has the ability to be independent. To show Nick that if he wants to go and look at a pack of markers in Walmart then he can’t be pushed away. He has the ability to take himself back to those markers. And of course if he looks cute enough, his parents will cave and buy him those markers. But I get ahead of myself.

We had a very busy day yesterday. First Nick got fitted for some new AFO's! Yay, his are currently too small. And I knew exactly what I wanted on his new braces, even if no one I talked to knows what Backyardigans are. But I'll show off the new braces when we pick them up in a couple of weeks.

 I brought Katheryn with me - she wants to come with us so I decided she could come and see how boring the appointments are. The two of them had a blast looking out the 4th floor window and look at the yellow school buses! And see mommy's car!

And we got to look at all the fishies before our appointment with Beth, OT.
And then it was time. It was there waiting for us in a treatment room.

We talked a little about it. There are a couple of different ones and I don't really understand the importance of one over the others. I guess I have some research to do.
But first we needed to do some measurements.



And it was time.


At first he just really wanted to play with his cars on the ground, so he had a couple of teary moments because he couldn't do what he wanted.
But he soon got the hang of it!


And then we had some smiles as he investigated by himself.


We had 2 different ones we tried. And to get Nick going, we let Katheryn try one too.


This green one was still a little big. Something about shoulders and wanting a smaller seat/base so that he could turn the wheels without spreading his shoulders. We want to limit wear on the shoulders - even at 2 years old.
But he could definitely get both moving well.


So we decided to take the blue one home to trial. And we are waiting to get a trial of the lighter one we saw first. I wish I could remember the names of them. (I think one was the zippy something). But this blue one is pretty heavy.


When we got home I wanted to take it out and try.
So the 4 of us headed off to Walmart to try it out.
The trial did not go as planned. We had fits and tears and parental frustration.
Nick really just wanted to be in the cart, then he wanted to be carried. So I ended up pushing him most of the time, but when we stopped he started to get the feel of going back and forth.
Especially in the previously mentioned crayon/marker aisle.

So trial day 1 is done.
The wheelchair is not going into the house, so I'd better start thinking of some new outtings for us to go on!

Friday, November 4, 2011

Take That spina bifida!



Thought I'd start off with a bang!


That is Nick with his new walker - the newest one (and the winner).
And that is Nick walking independently with it. I'm not helping his feet or moving the walker. He is doing it ALL BY HIMSELF! And we were all there!
And he was happy!

So Take That! Spina bifida!!


Of course it had to happen when Nick was wearing his new Take That! Shirt. We wore it to our spina bifida group and showed it off. It was the fundraising brainchild of Colleen (Nate's mom) along with the facebook group.