A Journey with Love and Laughter

Read about our family as we journey through life as a family, with siblings, school and spina bifida, and lots of fun and laughter along the way!

Monday, April 28, 2014

Fun Day

Just sitting around having fun!



And trying out a new toy!
The Radioflyer Cyclone


It is avaible and accessible for Nick. It moves using your hands and rolling the wheels. It spins and twirls and the kids love it!


Thanks to Great Auntie Wendy and Uncle Mike for picking it up in the States for us before it came to Canada!

Saturday, April 26, 2014

Aid4Alej

We went to a fundraiser this weekend. Raising money for a special little girl we have known for a number of years. Alejandra and her mother Antonella have joined us the last couple of years for our spipna bifida walk, we have done Conductive Education together as well as meeting in the Spina Bifida clinic baby group. And they will be at school together next year.


This is Antonella's second annual Aid4Alej event to raise money for stem cell treatments.
There were alot of fun things to do.
Katheryn was very excited about the face painting... and so was I



Nick was adamant that he did not want his face painted. Until the end of the night


It looked fantastic! 



There was music, but the kids were all over dancing to their own beat
After a bit of hesitation, Alejandra, Nickolas and Katheryn were all over the place together


There was also a photo-booth with costumes that Katheryn was excited about.

 
And live music by Danny Lamb a SB&H ambassador.

 
Katheryn got raffle tickets and picked out everything that she wanted.


And she guessed how many popcorn was in the bag!
And won!
Over 3333 kernels

 
We stayed until almost midnight, when the kids were turning into pumpkins



We went between the walker and wheelchair when Nick started getting tired.
As usual they were party animals and we had a lot of fun!


We even got to catch up on another SB family we haven't seen since baby group!

Can't wait for next year's Spring Fling!


Thursday, April 24, 2014

Resilience

I know kids are resilient, you hear it all the time when they are hurt. But to actually see it.
This is Katheryn's x-ray. I actually winced and said "ouch" when we followed up in the fracture clinic and it was up on the screen.
 

It's been a couple of days in the sling, and we keep trying to get her to rest the arm.
Fracture clinic went well, arrived an hour early and were second in line once they opened (we would have been first, but an old couple budded in line).
In and out in 30 minutes!


Since we took the whole afternoon off, we decided to go to Walmart.
We need to upgrade Katheryn's bike this year so we were sizing some. Katheryn didn't understand why we couldn't just buy one right now. She was good riding one handed.


Resilience... the ability for the body to recover quickly from illness, change or misfortune.


Now to keep her resting and letting it heal

Tuesday, April 22, 2014

Broken Wing

Katheryn fell off our bed Saturday night/Sunday morning. It stands 3 feet high, and usually the kids will fall asleep in our bed, especially when I'm working nights.
Katheryn had wanted to sleep at the foot of the bed, which isn't unusual, and she's never fallen off.
But she did.
 
When I got home in the morning she was fine, she said it hurt and had ice on it, but it wasn't swollen, she could move it and it only hurt a little when I touched it. She was all calmed down from the night (she was very upset when it actually happened).
 
So mommy-nurse kicked in...
She can move it, still playing and having fun (keeping her arm still), not swollen. We will just keep an eye on it, it wouldn't be broken...
 
This picture was taken with Katheryn showing off the dress that Jennifer (her daycare provider) got for her.
Does she look like she has anything broken?
 

So I was trying to decide if we should go to the Emergency Department...
I know that Emergency Departments see a lot of people who are not necessarily emergencies. But we were in Bowmanville, and it usually isn't that busy, she wasn't improving and it had been over 36 hours...
So we went

2 hours in the waiting room. With Katheryn playing and singing "Let it Go" I could feel people looking at me like I'm crazy for bringing her. If it was a 4-6 hour wait, I might have agreed with them
And even once we got a chair in the back, still another hour of waiting.


 She was getting tired, but obviously not in pain.
Then we got some action...
Saw a resident, saw a doctor, went for an x-ray, walked back to the unit and got the result (and I saw it on the x-ray) that yes, her collarbone was broken... all in 20 minutes.

The nurses were very attentive when it was identified that yes it was broken, and traded in the cotton triangle sling they were sending us home in, for a colourful and more effective one.
(Not that we got lousy care before just, it was just stepped up a notch)


I was very proud of this girl! First broken bone, x-rays, emergency room and no tears!

And thanks to Lakeridge Health in Bowmanville for their free wifi, quick visit (3 1/2 hours is quick) and digital x-rays that meant the doctor had the results before we even left the room!

Sunday, April 20, 2014

Easter fun!

The Easter bunny came!
 
There were eggs hidden throughout the house


Katheryn zoomed through the house finding everything


We made a corner for Nick and Kyle to search together.


It's challenging finding places to hide the eggs that are both accessible for Nick to find and not to easy. And of course fun to find as well.
I think it worked... Looks like they had fun!

 
(Katheryn fell off our bed this morning, but it doesn't seem to be stopping her)