A Journey with Love and Laughter

Read about our family as we journey through life as a family, with siblings, school and spina bifida, and lots of fun and laughter along the way!

Showing posts with label steps. Show all posts
Showing posts with label steps. Show all posts

Wednesday, March 15, 2017

Showing off!

We had a neurosurgery appointment yesterday. And I had been worried that Nick wasn't near to taking independent steps again. One of the signs of loss of function and the reason we did the spinal surgery last June.

Nick and I had tried doing the steps over the last month or so. Just like in the video, and so we watched the video together. But I couldn't get him to stop and just take little steps. He would just want to start and keep going.

On Monday we went to visit my work and go to a couple of meetings (March Break fun), and when we were walking back to the car Nick just started walking with his crutches and as I watched he just started to do this...





Over and over and over.
He liked doing it more than with his crutches down!

I know that this isn't the same as having the control to start and stop, but it is an incredible step!

The video I have above is actually 2 clips together. Well, the first video is cut off.
This is the whole first video, Nick thought it was hilarious and kept laughing at the video. Katheryn said it should be posted on Fail Army or Funniest Home Videos



I don't think it is that funny, but he bounced right back up!

We did have our neurosurgery appointment yesterday and got the all clear for another 6 months (earlier as needed of course).
I did mention that at the bottom of Nick's cyst scar is a bump. I think that it was normal (and when we saw orthopedics, he said he thought it was normal as well). But I wanted the all-clear from Dr Rutka. And I got it. He said it wasn't anything to be concerned about.



I also mentioned that Nick's eyes will sometimes twitch. But it didn't affect his vision, that I could tell. But we were having difficulty seeing the ophthalmologist at Holland-Bloorview, and were about 9 months past our recommended appointment time.
So Dr Rutka said he would put in a request for Nick for the Sick Kids ophthalmologist.

And we don't need to be back for 6 months!

Saturday, November 14, 2015

First steps!

The day finally came.
The day that I knew would come once Nick gained confidence in his ability.

With his higher braces and some parent coaching to take it one step at a time, he did it! Independent steps!
Of course I had to get a video and make him do it again


I knew that he could do it!
Nick is so proud of himself as well. As long as he stops and stabilizes himself I think that he can keep going. But of course he gets excited and just wants to get there and just goes.

Being able to take these 5 steps opens up new things for Nick.
He can do a lot by reaching and walking and holding onto things, but by taking independent steps and being stable enough to take those steps opens up possibilities!

I am so excited!
6 years and his first independent steps!