A Journey with Love and Laughter

Read about our family as we journey through life as a family, with siblings, school and spina bifida, and lots of fun and laughter along the way!

Saturday, June 27, 2015


To finish out our June of fundraising we set up a raffle at a family event

The SB&H donated to me some prizes and I was trying to figure out how to raise the most amount of money over the month and decided on our family party.

I had all of my pamphlets ready to share and armed Nick with them

And Maddie, my super-selling niece was in charge of the raffle tickets!

She went around to everyone at the party and sold all of the tickets!
I am definitely getting her help for all of my fundraising!

Thanks to these 2 we raised $255!

So Our total for this year is $845 for Nick's Cheering Squad!

Friday, June 26, 2015

School Pictures

 I wanted some last day of school pictures. So we went on our lawn like we have the last couple of years, and I said make a happy face for the last day of school... and this is what I get!
Katheryn sad because she isn't going back to school until September!
Something I am not surprised at, she did get straight A's (well, one B+ but that is practically an A)

 I did get the smiling picture as well (and a straighter leg)

   Nick wanted a ninja turtle fighting picture

And of course a calm, cool, all-ready for grade one picture!

And Katheryn is definitely all ready for grade 2!

They have grown so much since September!

  Now it is summer time!

Thursday, June 25, 2015

Good Bye and Good Luck

Today was graduation day for Nickolas. Nick isn't returning to Campbell's School next year but is transitioning to his home school (with Katheryn) in September.
As long as the Elementary Teachers don't strike.

I have been preparing for this for a long time.
We have been so happy that Nick went to Campbell's for 2 years, to become more prepared and older and more experienced. I think that we all needed that.
But now graduation day has come.

And I think we are ready.

Nick has grown so much, gained so much confidence

I am sad to leave the school. The experiences that Nick has gained in such a supportive environment is fantastic!
A Halloween Parade, meeting the Panam/Parapan mascot, golfing, hockey, meeting hockey players, and going to the zoo are just some of the activities that they have done over the last year

Nick also has therapy during school hours. In types of classes.
Like the Wild Wheelers is a class every week where the kids go around in their wheelchairs (inside and outside) and learn wheelchair skills, computer skills, yoga classes

This is their playground.

And of course one of the best thing about the school is being with kids who are just like him

With a team of people who are with him and supporting him every day.

But now the day has come, and I think that Nick is ready.
He will miss the school and his friends and teachers (and school bus driver). The school is small so he knows everyone, they know him. He gets around without a problem, the classes are small and he is the same as everyone else.

But his new school will be a change, he is still excited for it. He is excited to be at school with Katheryn and he already has some friends who are excited for him to be at school with them (all different ages).

Nick i s definitely going to miss his teacher. Mrs. Meyers has been his teacher since his first day at school last year. We are all going to miss her!

But this guy is ready for Grade 1!

As well, I got creative this year and we made our own Thank you gifts for his teachers, EAs, bus driver and OT and PT.
A mint plant

A picture for the bus

And some nail polish (ninja turtle colours)

Sunday, June 21, 2015

Happy Father's Day!

I have written a number of posts about Mother's day, well, because I write my blog and I am a mother... And even though Kyle isn't a big writer, doesn't mean Father's Day should be excluded from our family adventures.

So while Kyle is not my father, I will still celebrate him as the father of my children. and the one who is in this adventure with us!

Right from day 1,  presenting our daughter to the world.
The biggest smile I think I've ever seen on Kyle's face
And of course Katheryn is totally a Daddy's Girl

And while our world was shifting, you provide the stable base to our family, the positivity and belief to my worrying and wondering. Knowing that you are where our family needs you to be. That is what being a father means, to me.

From the first time you got to hold Nickolas in your arms

To boosting the kids on your shoulders

To one of the best Father's I know!

While our adventure continues, I know that my kids father is one who will make them proud

(and who is incredibly proud of his kids)

And to two of the Father's that have lead to way

Happy Father's Day!

Saturday, June 20, 2015

Summer weekend

Katheryn had Sparks camp this weekend!
2 days and nights of fun (all by herself)

Katheryn wasn't worried about leaving us, grabbed her stuff and was off with her friends!
She had so much fun! And at the end of camp graduated from Sparks with the rest of her troop.

She got very annoyed with my picture taking when we picked her up.
I expect I will see this face in my future... I just thought I had another 8 years or so...

Nickolas got to have his parents all to himself this weekend. So we went to a picnic at Grandview!
Queen Elsa was there

And Nick got to show us his accessible play ground

And he had a blast swinging on the swing!

And showing off his Ninja moves. He played with his friends from school that were there.

We did find out that Katheryn fills in a lot of the empty space. I don't know if I have ever heard Nickolas talk so much!
We sat and watched a couple of movies and he talked through the whole thing (until he fell asleep).
What is this, why is that happening, who are those people...

Having each child by themselves this weekend just shows Kyle and me how much they are growing up!

Wednesday, June 17, 2015

Orthodic changes, and another 'K'

We had a follow up with orthodics today.
I wasn't really sure if we were going to get more orthodics or not. But we were going to discuss some options.

The 'K' has been brought up again. As in KAFO
And even though we were so happy when we got rid of the 'K' 2 years ago when I see how straight he was after and then look at him standing now.
I know that we need it.

Nick is putting a lot of pressure on his knees. They are twisting and especially on his left side, the ligament is starting to stretch. Once the ligament is stretched it stays stretched. (I think it is 1cm longer right now). So the emphasis is on preventing it from stretching.

Of course if it is stretched it isn't supportive. What this means is that if he can't count on his knees for support, and he is only going to get older, taller and heavier. His left knee is starting to hurt him when he is walking all day.

So we tried some things
Nick was not that sure about it

These are called Gators and they support his legs and knees and keep his legs straight. They are bulky but they wanted to see what he would do

Once he was able to show off his walking with it, then the 2 PT's and the orthotist talked about our options. We have our PT from Campbell's who is with us for another week, and then we will transition to the school age program and a new team.

Everyone was discussing what we wanted. There is a new KAFO where the 'K' is removable. This answered all of our concerns. There was the knee support for when he needed, and it could come off when he doesn't need it. There is also talk about locking and non-locking. I want him to be able to bend his knee, so it will be non-locking. But there was a question about the type of jointing to use. So we'll see what we end up with.

Luckily we had already talked about designs (something I usually spend alot of time planning). And Nick knew exactly what he wanted. A hint is in the story Corey is reading below...

 We'll get them in a couple of weeks I think. And I'm hoping that it will help to be more supportive to Nick.