Fun shirts

I like buying things online. If someone posts a picture of a shirt or a link, I will very often go and track down the link. Especially if it is something fun, funny or awareness related.

I do this all the time for the kids clothes (and have been told I have the most interesting awareness clothing), and sometimes for myself (what is more fun that a shirt with a wookie on it?)

So when I friend posted about these shirts with superheroes on wheelchairs I had to check it out.

The company is called Adaptive Apparel www.adaptiveapparel.org/ and they have so many different super heroes (and villians) to choose from.

Nick thought it was so cool and wanted all of them!

He ended up picking Batman.

And Katheryn really wanted one too, and picked Wonder Woman.

 It took about 4 weeks for them to come, and cost $25 USD, and shipped was another $3 (and with a 15% off code - 15OFF - if it still works. With a lot of choice for colours and sizes and even type of clothing.

The kids were so, so excited when the package came. They couldn't even wait until the next day, they tore off their shirts and put these on. And then even asked for pictures!

I agree that it is a cool shirt. (The dark blue doesn't show off the batman, but Nick got what he wanted). It is about normalizing the unique and different, being proud and display yourself to the world (from their website).

Back to Normal

Nickolas is completely back to normal. He is happy, he is playing. He is actually happier than he's been in a long time. More aware and more bright eyed. And I didn't notice anything when it happened.

He is eating up a storm again - but has started to be a bit picky with his foods. He refuses the breakfast I have been giving him for the last month or so, and won't just eat whatever is in front of him. I (grudgingly) suppose this is him getting older and developing his own tastes. But it was really nice that he would eat whatever I put in front of him.

We have also been able to get him up in his stander and do more physio again - another area I feel I'm failing him at! During December when we were all sick for 2 weeks he didn't go in it, and the week he was in the hospital and until he was back to normal we kept the stander in the corner.
(So he is in his stander in this picture - I just put his shirt over the frame because he was cold)

Now it's time to get moving again - literally.

Oh yeah.. There is my little boy! What a clown!!!

Normalcy

Things are normal, we have a rhythm. We've hit our stride. Spina bifida is not the first thing we think of everyday, or the last thing every night.
I'm not quite sure when that happened. But it happened.

We have a routine now, that part is new.
Nickolas is actually on a nap-time routine! Yay!!! And he is sleeping more than 10 minutes at a time - sometimes I can even get an hour... or (yay) 2 hours! I've probably jinxed myself now I know.
Maybe the routine is what has helped me feel more normal, that I'm able to anticipate our day. Get out in the world, enjoy the last days of summer.
Not that we stayed at home before, I was just finding I'd look around and all of a sudden it was 4pm and time to get supper ready.

Normalcy has developed. What do we do with Nickolas that we didn't do with Katheryn? Not so much. We play the same games, sing the same songs, go for the same walks, play with the same toys.
Nickolas is less mobile. He's got rolling down pat, but not enough to go to where he wants to go.

Our days are cuddling, playing, diapers, baths, eating and cooking. With some outdoor walks or parks thrown in for good measure.
Yes the diaper changing involve cathing and the eating involves medicines and outdoor time involves careful monitoring of temperatures and finding cool shady areas. Oh yeah and playtime involves physio... but shh don't tell Nickolas he's working!