Things are Moving

So I'm finally seeing the high risk clinic at Mt Sinai on Monday and hopefully get some answers about what the plan is for the rest of the pregnancy.
I had an ultrasound done and it showed no hydocephalus (great!) but I don't really trust what the tech saw, considering it said he couldn't see an open spina bifida - which we KNOW is there! And the head is small, which freaks me out a bit, but we'll keep watching it. But no hydro - which is what we really wanted to find out. During the ultrasound we could see his mouth opening and closing - I think Nickolas and Katheryn have been 'talking' already! He didn't move that much during the ultrasound, but as soon as I was outside he was kicking up a storm - this kid moves around ALL the time! When ever I'm awake he is usually moving and letting me know he's there. Hopefully when he's out he'll sleep a bit.

It's hard not knowing, not knowing how bad things are, or how good. Not knowing and not seeing our little boy, just imaging the worst and hoping its not that bad. Kyle and I have different perspectives about the spina bifida and the ultrasounds. He hopes for the best, I plan for the worst. So we compliment each other nicely. I am just so afraid of getting my hopes up, that things won't be as bad as what I've read.

We are trying to get the baby room ready. Slowly but surely things are progressing, we are emptying out the room and we'll start painting in a month or so. Katheryn thinks its great that she can move around the computer room a bit more. She loves running around upstairs and runs everywhere now. We just walk over to daycare in the morning instead of putting her in her stroller.
Oh are we going to have our hands full soon!

Holding Pattern

28 weeks now. It seems to be going to quickly and so slowly at the same time. It seems like we are in a holding pattern right now. When we found out about the spina bifida everything moved so fast, but now nothing.
I've kept going to Dr Samra, but I know that I'll starting going to a specialist at Mt Sinai soon, but I don't know when or who. We are kinda of stuck. We go for another ultrasound this week to look/check for hydrocephalus ("water on the brain") which is the next big thing we need to worry about. In July it hadn't developed yet, but can develop very quickly at any time (or not at all). It would effect when we expect to deliver. I don't know if we should have done ultrasounds yet, but if it was there and was large - we aren't going to deliver at 26 weeks, or 28 weeks either.

I am always amazed when people say how brave we are being. It doesn't seem like we are being brave. We aren't doing anything especially courageous, we are dealing with what life has sent us. We are fighting for and loving our child.

So I don't actually have much more news. Nickolas moves around ALL the TIME! (I'm not complaining) and everywhere. He is probably breech, or flipping back and forth, up and down.

We are going to start on the nursery soon. I have plans and paint chips, but of course it is still filled with our computer room crap. But we have time (hopefully), 28 weeks is a big milestone to meet, next is 32 weeks, but of course I still 39 weeks in my head. And that is what my timeline for my research project states (yes I'm trying to finish my Masters before the baby comes - I know I'm crazy).

Katheryn has become our next artist. Drawing all over paper, magnets, floors, herself, her parents - not the walls (yet). And Kyle is just waiting for her to hit 20 lbs so she can go in her new car -big girl - seat.
She is such a monkey!