A Journey with Love and Laughter

Read about our family as we journey through life as a family, with siblings, school and spina bifida, and lots of fun and laughter along the way!

Saturday, August 2, 2014

How are we doing?

Everyone has been asking how we are doing.
I'm still amazed at how well Nick is doing, that sometimes I forget that Nick still needs time to rest and recover.

Nick starts the day with lots of energy.
But not appetite. He hates his breakfast now, only wants juice or chocolate milk.
He's happy, doesn't have any pain. Sometimes he pulls or stands the wrong way and he squints, but it gets better when we stop whatever it was that hurt to begin with. I've tried to get him to take Tylenol or Advil (we also got a prescription for Morphine) but he refuses it.
When we first got home I tried to force him to take the Tylenol/Advil, but the stress of doing that wasn't worth the result.

Life is getting back to normal and routine. They told us that we could give him a tub bath right away, so that I what we did the first morning back. We had a bath. Nick was very worried about having a bath and getting his tube dirty.
But once he got in, he didn't want to come out.

We still have lots of cuddles during the day. Nick gets tired quickly.
We've been watching lots of movies and playing games at home. Everything turtles, turtles, turtles.
Katheryn has been at daycare, and then is at to the cottage for a couple of days to given Nick his down-time.

 To get Nick up and moving we went out grocery shopping. Nick helped to push the cart around the store. He enjoyed himself and had a big rest when we got home.
No pain though.
And that was lots of stretching and pushing.

So Nick is doing fantastic. We are balancing between resting and working.
He's not too sure about moving around, but has been showing off when we get him up.

And he definitely has that self of humor back!
(Yes he is balancing toilet paper on his head while he is on the toilet).

Before his operation I had worried a lot about when we would see this smile. If we were doing the right thing. What kind of pain he would be in, what rough nights he would have, when we would be home. But really it was when would we get this smile back.
I wondered about how much time I should take off work, I didn't want to take too much or too little. I start back on shift next Friday, which is good. Nick is doing great, but to go to day care (or if he was at school) for the full day... he's not there yet.

So how are we doing? Smiling, resting and recovering.

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