Sometimes I forget about the spina bifida. When he's lying down and kicking those beautiful feet, in his crib, or when I'm changing him. What is more wonderful than that (even better is when he tries to pee on me!). We play, move his feet, kick his legs and work on rolling side to side. Then I try standing him up - what's wrong with that? Nothing except he can't feel the bottom of his feet. He doesn't know they are touching the ground. He doesn't even try to straighten his legs. Up until then I can sometimes pretend that spina bifida at S1 is no big deal.
I know he will learn, everyone says he should be able to walk, he does have strength in his legs and kicks things. I just wish he would stand up on my lap. And he will. Not maybe, he WILL. He can feel some things on his feet, he just doesn't recognize what it is. This is something that can be taught. I think sometimes walking is over-rated. Like that is the first question that people ask, will he walk? There are things that are more important than walking.