A Journey with Love and Laughter

Read about our family as we journey through life as a family, with siblings, school and spina bifida, and lots of fun and laughter along the way!

Monday, June 27, 2016


Nick went to school for a couple of hours today and he did great! He should be good to go back tomorrow!

He is spending the whole time in his chair, both to protect him from falling and to preserve his energy. He also has instructions from neurosurgery to not participate in sports, recess or gym. So going to school is still low-key.

Nick said that everyone was very happy to see him back at school (and swamped him... in a good way). 
He really is happy to be back at school, and wants to go the whole day tomorrow. So I will send him in, with his instructions, and I will be home anyways if he gets tired and needs to come home.

We had follow up with physio today as well. We added some extra exercises.
One of the things that I have noticed is that the back of his legs are tight. He has a hard time straightening his leg fully. But physio said that was from being in bed so long, and it will come back with some work.
And with physio the exercises we are adding will help with that.

We have been taking it easy, and now we are working towards getting him up and moving more.
He still gets tired more, but I don't mind the extra snuggles

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